The Sleep Disorders Australia Annual General Meeting will be held @ 7.00pm Monday 29th October 2018 to be held in Sydney. As per Sleep Disorders Australia’s Management Guidelines there are two board positions that will become vacant. The positions are Company Secretary and a shared Publications role/Sleep Apnea Coordinator.
The Publications role includes assisting with the management of our website and other IT requirements. Advanced Microsoft Office skills desirable. The Sleep Apnea Coordinator duties are as follows:
• Coordinate our CPAP “buddy” program, ie: keep an updated list of who our buddies are and refer people to them when necessary.
• Keep sleep apnea info eg; factsheets and website content etc up to date.
• Keep abreast of any relevant new research discoveries. Also, policy decisions regarding the Department of Health ie: MBS, PBS etc that affect sleep apnea sufferers. And benefits for sleep apnea sufferers eg: health fund rebates and other related government rebates.
• Share relevant news, information and research etc with our Publications Director ie: for the newsletter, website, social media.
• Maintain the used CPAP ad page on SDA’s website.
• Work with the Marketing Director on the annual Sleep Apnea Awareness Day.
• Work with others on updating our current presentation.
• It would be desirable if the sleep apnea coordinator was an active member of SDA’s private Facebook Support Group (or preferably a group admin alongside our other admins).
If you have experience and time to volunteer for either the role of Company Secretary or (shared) Publications/Sleep Apnea Coordinator please forward your nomination to [email protected]. Nominations are open until 31st August.PLEASE NOTE: All work is done online, however as a Board Member you would be required to attend the National AGM (expenses paid). The board generally meets a few times via teleconference throughout the year although there may be one other mid year face to face board meeting that you would be required to attend.
Friendly reminder! Membership renewals are now overdue. If you haven't already please renew as soon as possible.
Exciting news for members is that we have reduced membership costs – $25.00 for yearly membership with an electronic newsletter copy, $30.00 yearly for a hard copy posted.PLEASE NOTE:We have a new Treasurer and Membership Director, Karalyn Patrick.Emails to: [email protected]Postal address is:P.O. Box 455 Willunga SA 5172
The 2017 Nobel Prize in Physiology or Medicine was jointly awarded to Jeffrey C. Hall, Michael Rosbash and Michael W. Young for their “discoveries of molecular mechanisms controlling the circadian rhythm”..To honour this great achievement the slogan of World Sleep Day 2018 is ‘Join the Sleep World, Preserve Your Rhythms to Enjoy Life’. The goal is to raise awareness of the importance of circadian rhythms in healthy sleep. More info HERE.
SDA runs its Annual Appeal each year leading up to the end of the financial year. SDA receives no government funding, and relies on membership subscriptions and donations to fund its activities. Donations are tax deductible. See info HERE.
The RLS Foundation (USA) offers free webinars on topics that are relevant to understanding and coping with Restless Legs Syndrome (RLS). Their one-hour webinars include a Q&A session after the speaker. This is a great opportunity to share questions and comments with other patients, medical professionals and RLS experts. When you register for the webinar you can submit your questions on the topic to be answered as time allows.
Their next webinar is on Tuesday, March 14th, 2018. Click HERE for more details
Narcolepsy is a chronic neurological disorder that affects the brain’s ability to control sleep-wake cycles. 10th March 2018 marks Suddenly Sleepy Saturday - aka Narcolepsy Awareness Day. learn more about this condition and how it can affect people. See info HERE
A US study has found that a drug with a similar composition to synthetic could be a safe and effective treatment for obstructive sleep apnea. See article in the March 2018 issue of the SDA News.
28 February 2018 marks the tenth international Rare Disease Day coordinated by EURORDIS. On and around this day hundreds of patient organisations from countries and regions all over the world will hold awareness-raising activities based on the theme of research. See Info HERE.
SDA has launched campaigns in Queensland and Tasmania to educate people about the dangers of driving when tired. We hope to extend the campaign nationally. Read more HERE.
The Annual Rotary Christmas Raffle was drawn on Monday 15 January at the Merrylands Bowling Club. Unfortunately, none of the tickets sold by SDA were among the winners. Details found here.
New Australian research has discovered that dementia in the elderly can be predicted by measuring REM sleep. Read the article in the December issue of the SDA News.
The 2017 Nobel Prize in Physiology or Medicine has been jointly awarded to Jeffrey C. Hall, Michael Rosbash and Michael W. Young for their “discoveries of molecular mechanisms controlling the circadian rhythm”. Read more HERE.
New research from UCLA has discovered evidence that a gene in skeletal muscle controls the ability to rebound from sleep deprivation. This surprising evidence could lead to alternative treatments for insomnia, other than medications that target the brain. Read more in the October issue of the SDA News.
People with obstructive sleep apnea (OSA) may be at a higher risk of developing atrial fibrillation or irregular heartbeat. Canadian researchers have published a recent study, which has been summarised in the August issue of the SDA News.
Researchers in Europe have found that insomnia can be linked to an increased risk of heart attack and stroke. A short report and the summary of findings was included in the June 2017 issue of the SDA News.
A study of children with sleep apnea has found significant reductions of grey matter in several regions of the brain. The findings point to a strong connection between sleep disturbance and the loss of neurons in the developing brain. A report on the research and findings is included in the June 2017 issue of the SDA News.